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Category: Advocacy

H.R. 620

Posted in Advocacy, Outreach, and Public Awareness

We need help getting additional Senators to sign a letter opposing H.R. 620 or any notice and cure effort in the Senate.

Those groups supporting H.R. 620 or bills that would create a notice and cure provision for the ADA have started an effort to dissuade Senate offices from signing on to the Sen. Duckworth-led letter opposing H.R. 620 or any notice and cure bill being brought before the Senate.

We need at least seven more offices to sign onto the letter.

Calls, e-mails, and visits from state constituents to the Senate offices below asking their Senator to sign onto the Duckworth letter are needed. The groups that support H.R. 620 and notice and cure provisions are mustering their forces. It is time to put pressure on these additional offices to sign onto the Sen. Duckworth letter.  A copy of the letter being led by Sen. Duckworth is also below. If you have questions, please ask. Now that the supporters of notice and cure have started to push back it is important to have the voices protecting the ADA to be heard loud and clear in the Senate. Thank you for your help!

Sen. Cantwell (WA)

Sen. Cortez Masto (NV)

Sen. Donnelly (IN)

Sen. Heinrich (NM)

Sen. Heitkamp (ND)

Sen. King (ME)

Sen. Manchin (WV)

Sen. McCaskill (MO)

Sen. Nelson (FL)

Sen. Peters (MI)

Sen. Udall (NM)

Sen. Warner (VA)

Letter Text:

The Honorable Mitch McConnell                                                             The Honorable Charles Schumer

Majority Leader                                                                                        Minority Leader

United States Senate                                                                                 United States Senate

S-230, The Capitol                                                                                    S-118, The Capitol

Washington, DC 20510                                                                            Washington, DC 20510

Dear Majority Leader McConnell and Minority Leader Schumer:

We are writing to express our strong opposition to H.R. 620 the ADA Education and Reform Act and any legislation that would repeal or weaken rights under title III of the Americans with Disabilities Act (ADA), which prohibits discrimination on the basis of a disability in certain places of public accommodation.[1] As a civil rights law, title III of the ADA was modeled after title II of the Civil Rights Act of 1964, which prohibits discrimination on the basis of race, religion, and national origin in certain places of public accommodation.[2]

Title III of the ADA does not permit monetary relief in the form of damages or settlements. Similar to title II of the Civil Rights Act of 1964, the ADA only permits non-monetary injunctive relief and recoupment of reasonable attorney’s fees for individuals who prevail in a suit to enforce their rights under title III and secure removal of architectural barriers in public accommodations where readily achievable.

Congress carefully crafted title III of the ADA to make sure private enforcement actions prioritize achieving readily accessible barrier removal and are an affordable avenue for Americans with disabilities to seek relief. The expectation was that businesses would make themselves accessible before people with disabilities showed up at their place of business, rather than waiting until receiving a notice that people with disabilities have been excluded before starting to think about complying with the law.

The ADA is a groundbreaking civil rights law that recognizes the reality that removing an architectural barrier, when readily achievable, is a proven, efficient solution to improving accessibility in public places and providing equal treatment of people with disabilities across the United States. In recognizing the importance of accessibility, Congress also established tax incentives for businesses to lower the cost of making a place of public accommodation more accessible pursuant to ADA guidelines and requirements for architectural barrier removal.[3]

Proponents of H.R. 620 assert that eliminating the right of Americans to seek immediate injunctive relief under title III of the ADA is necessary to address private lawsuits that threaten businesses with punitive damages and demand monetary settlements. However, these private actions seeking damages are filed pursuant to specific State laws that unlike Title III of the ADA, authorize monetary damages. H.R. 620 would make no change to those state laws and therefore fails to address lawsuits seeking damages.

However, it would destroy any incentive under the ADA for timely removal of architectural barriers in public accommodations. Because Title III of the ADA does not provide for damages, a business would have no reason to comply with the law unless and until it received written notice from a person with a disability who had been harmed, informing the business that it had violated the law, and the business would then have four months to remove the barrier or make “substantial progress” in doing so. There would be no consequence for breaking the law until the notice was received and the waiting period expired.

When supporters of the discriminatory H.R. 620 argue for its necessity by citing examples of alleged minor accessibility infractions, they miss the point that this bill undermines the rights of people with disabilities, rather than protects them. They also reveal a callous lack of empathy and understanding for the accessibility challenges Americans with disabilities face every day. There is nothing minor about a combat Veteran with a disability having to suffer the indignity of being unable to independently access a restaurant in the country they were willing to defend abroad. There is nothing minor about a child with cerebral palsy being forced to suffer the humiliation of being unable to access a movie theater alongside her friends.

Simply put, we reject in the strongest terms the offensive suggestion by supporters of H.R. 620 that a civil rights violation denying access to a public space could ever be “minor.” A ramp a few degrees too steep or a shower head a couple inches too high from the legally prescribed standards are the difference between accessibility and discrimination. To efficiently address the aforementioned examples, we would urge operators of public facilities to simply fix the problem by lowering the ramp a few degrees or lowering the shower head a couple inches. This will not only make sure entities comply with the law, but more importantly, providing accessibility will protect the health, safety and dignity of Americans with disabilities, as promised under a civil rights law passed nearly 28 years ago.

We share many of the concerns on the potential impact of H.R. 620 expressed by the U.S. Department of Justice (DOJ) Civil Rights Division, which administers and enforces the ADA. We believe DOJ is right to be troubled by the premise that H.R. 620 would, “…[s]ubstantially change the balance Congress struck for private enforcement actions pursuant to title III of the ADA.” We also share DOJ’s concern that:

“The proposed notice and cure process would also unnecessarily limit individuals’ abilities to obtain much-needed barrier removal in a timely manner by imposing additional requirements that may not result in the collaborative process that the proposed bill intends, but may instead result in additional areas of litigation.”[4]

Congress should promote ADA compliance nationwide by improving existing tools and resources, rather than advancing a harmful and duplicative proposal such as H.R. 620, which would upend a carefully crafted legal framework that has boasted strong bipartisan support for nearly three decades. It would be more productive to enhance funding for existing ADA education and mediation programs rather than requiring lengthy notice periods that remove any incentive to follow the law until violations are detected and civil rights are denied.

We are ready to work with any Senator who is interested in developing pragmatic and bipartisan solutions that improve business’ compliance with the ADA. For example, we support strengthening the capabilities of the DOJ Civil Rights Division’s ADA Technical Assistance Unit, which provides education and technical assistance to help businesses comply with the law. We should also expand the ADA National Network, which supports ten regional ADA Centers and an ADA Knowledge Translation Center. These resources, funded through the U.S. Department of Health and Human Service’s National Institute on Disability, Independent Living, and Rehabilitation Research, provide free assistance to entities seeking to comply with the ADA.

However, we will strongly object to any time agreement or unanimous consent request with respect to consideration of H.R. 620, or any similar legislation that seeks to weaken Federal protections for an entire protected class of Americans. By preserving title III of the ADA, Congress will uphold the intent and principle of the underlying statute that disability rights are civil rights.

No American should be forced to endure discrimination for any length of time so that places of public accommodation may learn how to follow a seminal, bipartisan civil rights law that was enacted in 1990. Respectfully, we urge you all to join us in supporting the rights of Americans with disabilities by making clear that H.R. 620, or similar legislation, will never receive a vote in the United States Senate during the 115th Congress.


House passes changes to Americans With Disabilities Act over activists’ objections

Posted in Advocacy, Disability, and Public Awareness

The House on Thursday passed legislation that would amend the Americans With Disabilities Act over objections from disability rights advocates and Democratic leaders, who warned that the bill would remove incentives for businesses to comply with the law.

The ADA Education and Reform Act passed on a 225-to-192 vote, with 12 Democrats joining all but 19 Republicans to approve a bill that proponents say is aimed at curbing unscrupulous lawyers who seek profit by threatening businesses with litigation without actually seeking to improve access for the disabled.

See more at The Washington Post

WV ABLE Website

Posted in Advocacy, Disability, and Public Awareness

WV ABLE’s website is live! Please visit the link below for more information. If you have questions, feel free to contact the WV State Treasurer’s Office at 1-800-439-1653 or the NWVCIL at 304-296-6091.

What is a STABLE Account?

A STABLE Account is an investment account available to eligible individuals with disabilities. STABLE Accounts are made possible by the federal Achieving a Better Life Experience (“ABLE”) Act. STABLE Accounts allow individuals with disabilities to save and invest money without losing eligibility for certain public benefits programs, like Medicaid or SSI. Earnings in your STABLE Account are not subject to federal income tax, so long as you spend them on “Qualified Disability Expenses.”

STABLE Accounts have some similar features to normal bank accounts, but they are not checking or savings accounts. STABLE Accounts are investment accounts, similar to 529 college savings accounts or 401(k) retirement accounts. When you deposit money into your STABLE Account, your money will be invested in different options that you choose. While you can still withdraw and spend your money whenever you need it, a STABLE Account also allows you to grow your money and to save long-term for disability expenses.

WVABLE is West Virginia’s ABLE plan.  The West Virginia Treasurer’s Office has partnered with STABLE Accounts and the Ohio Treasurer’s Office to offer this program to West Virginians with disabilities. Although STABLE Accounts are available nationwide, WVABLE is only available to West Virginia residents. Through WVABLE, West Virginians are able to open STABLE Accounts at discounted rates.


SILC Open for Applications

Posted in Advocacy, Disability, and Public Awareness

January 3, 2018

Interested Persons:

Are you a person with a disability who wants to get involved and make a difference? Do you have a family member with a disability or do you work to improve life for people with disabilities? The West Virginia Statewide Independent Living Council (the Council) is recruiting new members to fill vacancies for terms beginning July 1, 2018 and you should apply!

This federally mandated Council works closely with the Centers for Independent Living and monitors, reviews, and evaluates the implementation of the State Plan for Independent Living.

The Council seeks to maintain diversity of representation including disability, age, ethnicity, and life experiences. If you or someone you know would like to apply for membership on the Council, please return a completed application form (enclosed) by February 9, 2018.

Please feel free to duplicate this notice and the application form and share them with as many individuals as you wish. This information is also available on the SILC Web site at:

Please review the responsibilities carefully and apply only if you are willing to fulfill them.

All applications will be reviewed and considered. Nominations selected by the Council will be submitted for appointment by Governor Jim Justice. This process can be lengthy and new members are not always appointed before the terms begin in July. We appreciate your patience. If you have questions or need further information or assistance, please feel free to contact me.


Ann Watts McDaniel

Executive Director

NWVCIL’s Youth Club!

Posted in Advocacy, Disability, Group, Outreach, and Public Awareness

Starting January 29, 2018 from 6 pm – 8 pm @ the CIL and will continue every fourth Friday of the month! This will serve youth with disabilities, ages 18-24 in the Morgantown and surrounding area. This club will offer: Peer Support Independent Living Skills Training Build Relationships And… The opportunity for ownership over the club…. which means, YOU plan activities on what YOU want to learn, see & do! For more information please contact Riley Freeland @ 304-296-6091 or

NPR Series on Sexual Assault and Intellectual Disabilities

Posted in Advocacy, Disability, and Public Awareness

At a moment of reckoning in the United States about sexual harassment and sexual assault, a yearlong NPR investigation finds that there’s little recognition of a group of Americans that is one of the most at risk: adults with intellectual disabilities. The series starts on Monday, January 8 and runs through January 18th.

Jan 8: Morning Edition. Correspondent Joe Shapiro talks about the series with host Steve Inskeep

Jan 8: All Things Considered: The epidemic of sexual abuse of people with intellectual disabilities. Numbers obtained by NPR show they are sexually assaulted at rates more than 7 times those for all adults without disabilities.

Jan 9: Morning Edition: A visit to a Sex Ed class for people with intellectual disabilities. They talk about how they want relationships, but how the sexual violence of their past often gets in the way.

Jan 10: All Things Considered: On cases that go unnoticed when people have difficulty communicating.

Jan 16: All Things Considered: Police and prosecutors are often reluctant to take these cases. NPR goes back to Essex County, New Jersey, where the first case to get widespread attention–in Glen Ridge, New Jersey, 25 years ago–was prosecuted. And look at what prosecutors have learned since.

Jan 18: Morning Edition: Therapists Nora Baladerian and Karyn Harvey talk about the stunning violence in the lives of their clients.

Jan 18: All Things Considered: Self-advocates speak–thoughtfully–of the effects of sexual violence. This piece is entirely in the voices of people with intellectual disabilities (plus Joe Shapiro).

There will be print stories (with photos and art) on-line at the radio stories can be heard there.

World AIDS Day

Posted in Advocacy, Disability, and Public Awareness

“On this World AIDS Day we are here to remind you that ‘Everybody Counts’!

Everybody counts if we are to achieve universal health coverage and everybody must count if we are to eliminate AIDS and viral hepatitis as public health threats. Health services should be adapted to reach and meet the needs of those populations most at risk and affected, and this includes implementing a ‘zero tolerance’ policy to stigma and discrimination in all health services, and fully engaging communities as equal and essential partners in the response.”

See the full statement from Dr Tedros Adhanom Ghebreyesus here: