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Category: Advocacy

SILC is Recruiting!

Posted in Advocacy, Disability, and Public Awareness

From the WV Statewide Independent Living Council:

Interested Persons,

Are you a person with a disability who wants to get involved and make a difference? Do you have a family member with a disability or do you work to improve life for people with disabilities? The West Virginia Statewide Independent Living Council (the Council) is recruiting new members to fill vacancies for terms beginning July 1, 2020 and you should apply!

This federally mandated Council works closely with the Centers for Independent Living and monitors, reviews, and evaluates the implementation of the State Plan for Independent Living.

The Council seeks to maintain diversity of representation including disability, age, ethnicity, and life experiences. If you or someone you know would like to apply for membership on the Council, please return a completed application form by February 14, 2020.

Please feel free to duplicate this notice and the application form and share them with as many individuals as you wish. This information is also available on the SILC Web site and you may complete and submit your application at: www.wvsilc.org/wvsilcapp.htm

Please review the responsibilities carefully and apply only if you are willing to fulfill them.

All applications will be reviewed and considered. Nominations selected by the Council will be nominated for appointment by Governor Jim Justice. This process can be lengthy and new members are not always appointed before the terms begin in July. We appreciate your patience. If you have questions or need further information or assistance, please feel free to contact me.

Sincerely,
Ann Watts McDaniel
Executive Director

National Survey on Health and Disability

Posted in Advocacy, Public Awareness, and Research

The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Whether you have private insurance, insurance from an employer, TRICARE, Medicaid, Medicare, or no insurance right now please complete the survey.

Adults, 18 and over, with any type of disability, mental or physical health condition are encouraged to participate.

The survey should take about 20 minutes to complete.
Responses are anonymous.

To complete the survey copy and paste into your browser: http://tinyurl.com/NSHD2019

The survey closes on January 30, 2020.

Whether or not you complete the survey, you can choose to enter a drawing to win one of ten $100 gift cards. If you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1.855.556.6328 (Voice/TTY) or email healthsurvey@ku.edu.

WV YOUTH LEADERSHIP FORUM 2020

Posted in Advocacy, Disability, Public Awareness, and Training

The WV Youth Leadership Forum (YLF) is a statewide training and leadership development event for students (Delegates) with all types of disabilities, high school juniors & seniors and college freshmen, who are transitioning to adulthood. The YLF will be held on the campus of West Virginia State University in Institute, WV on June 22-25, 2020.

The YLF will provide a variety of activities, learning opportunities, and a chance to make new friends.

Learn about the history of disability and the disability rights movement in America, national leaders, and your place in the movement and disability culture. Be a part of something much bigger than yourself!

Twenty-five youth (Delegates) will be selected to attend the YLF – at no cost – make sure you are one of them!

For more information call 304-766-4624 or toll free at 855-855-9743. You may also visit our website at www.wvsilc.org.

Public Hearings for 2020-2024 Consolidated Plan and FY2020 Annual Action Plan

Posted in Advocacy, Outreach, and Public Awareness

From Community Advancement and Development; A Division of the West Virginia Development Office:

We would like to remind you of upcoming public hearings that will be conducted in November for the 2020-2024 Consolidated Plan and FY2020 Annual Action Plan. The public hearings will be held at five locations throughout the state to gather public input for the assessment phase of the Consolidated Plan and Annual Action Plan process. Information on public hearing notices, updates, and specific locations can be found below:

Notice_of_Public_Hearings-2020-2024_Consolidated_Plan_and_FY_2020-Annual_Action_Plan_Fall_2019

These meetings are an opportunity to gain highly valued input from the public as part of the State’s housing and community development needs.

Every five years the West Virginia Development Office (WVDO), an agency of the West Virginia Department of Commerce, along with the West Virginia Housing Development Fund (WVHDF) develops a 5-year plan Consolidated Plan to guide the use of federal funds received from the U.S. Department of Housing and Urban Development (HUD).

The 2020-2024 plan will be submitted to the U.S. Department of Housing and Urban Development (HUD) within 60 days after the date 2020 allocations are announced, but no later than August 16, 2020 and will guide the expenditure of funds for housing and community development in non-entitlement areas for the Community Development Block Grant (CDBG) and the entire state for Emergency Solutions Grant (ESG), Housing Opportunities for Persons With AIDS (HOPWA), the HOME Investment Partnership and Housing Trust Fund (HTF) programs. The 2020 Annual Action Plan which is the first year of the 2020-2024 5-year Consolidated Plan will also be submitted.

The Community Needs Assessment Survey is available at https://www.surveymonkey.com/r/WVCAD until close of business, Monday March 23, 2020.

The 2015-2019 5-Year Consolidated Plan, 2019 Annual Action Plan (AAP), 2018 Consolidated Annual Performance and Evaluation Report (CAPER) and the Citizen Participation Plan are available on the West Virginia Community Advancement and Development webpage at https://wvcad.org/resources.

Any questions regarding the 2020-2024 Consolidated Plan can be directed to Sherry Risk. Please feel free to share this information or if you know of someone to add to the stakeholder email or mailing list in order to receive updates, public notices and the survey, please email:

Sherry Risk, CDBG Project Manager
West Virginia Development Office
1900 Kanawha Boulevard, Suite 700
Charleston, WV 25301
Sherry.L.Risk@wv.gov
(304)957-2068

AAPD/NCIL Presidential Candidate Questionnaire

Posted in Advocacy, Disability, and Public Awareness

In 2020, approximately 23% of the American electorate — over 35 million individuals — will be people with disabilities. As people with disabilities, we want to live independent lives and contribute our talent and energy to the future success of our great nation. There are over 60 million Americans with disabilities who make remarkable and valuable contributions to our communities.

In an effort to inform the disability community of the presidential candidate’s disability policy positions, initiatives, and priorities, the American Association of People with Disabilities (AAPD), the National Council on Independent Living (NCIL), and the REV UP Campaign have developed a presidential candidate questionnaire. Click here to download a copy of the questionnaire (plain text version). So far, the following candidates have completed the questionnaire: Steve Bullock, Pete Buttigieg, Tim Ryan, Bernie Sanders, Joe Sestak, and Marianne Williamson.

Please visit aapd.com for full responses.

Vera Institute of Justice’s Center on Victimization and Safety Toolkit Survey

Posted in Advocacy, Public Awareness, and Research

The Vera Institute of Justice’s Center on Victimization and Safety works to ensure that traditionally under-served victims of crime have equal access to victim services and criminal justice interventions. We do this by fostering collaboration among and building the capacity of victim service organizations, population and/or culturally specific service providers, and the criminal justice system. The Center combines research, technical assistance, and training to help policymakers and practitioners’ close gaps in systems and ensure that all survivors of violence have access to the services and support they need and want.

Working in partnership with the Department of Justice, Office for Victims of Crime, the Center on Victimization and Safety is currently creating an online toolkit for a range of audiences. One part of the toolkit is looking at the experiences of people with disabilities with the disability service system.  We are looking to include some short quotes from those who use these systems to help others learn.

If you are interested in sharing and are willing for us to use your first name and where you are from (city/state) we would really like to include your words. Here are some things we would like to know:

1.      How easy is it for you to find disability services where you live? (please indicate whether you are in an urban or rural area) Do you have a lot of choices or is it more limited?

2.      How easy is it for you to travel to disability services where you live? Are services accessible via public transportation? Do you have public transportation? What would be a typical travel time to get to the services?

3.      Is there anything unique about the disability services in your area? Something that is specific to you community.

4.      What are some of the things you really like about the services? What are things that you might not like?

5.      Are there any barriers you face getting disability services in your area?

6.      If you have lived and received services from multiple places (if you have lived in other states, or counties or countries), how would you compare them?

I know this is short notice but please reply to me by September 6th.

Please feel free to share with others.

Leslie Myers, MS, CRC, CCDVC
Senior Program Associate
Vera Center on Victimization + Safety
1111 14th St NW, Suite 920
Washington, DC 20005
T: (630) 486-3367

C: (646) 530-3523
Fax: (202) 941-9407
E-mail: lmyers@vera.org
AIM: Leslie at Vera

www.endabusepwd.org

Why the Census Matters for People with Disabilities

Posted in Advocacy, Disability, and Public Awareness

From https://www.ndrn.org

Key Takeaways

The decennial census is the constitutionally mandated count of all residents of the United States.

  • Census data help direct more than $800 billion a year in federal funding, including for key programs that support and protect the rights of people with disabilities.
  • The Census Bureau considers people with disabilities hard to count. However, the bureau has taken steps to make participation more accessible.
  • Stakeholders can help ensure a fair and accurate count of people with disabilities. Community organizations can, for example, play a vital role as trusted partners in conducting effective outreach.

For the full text, please visit https://www.ndrn.org/wp-content/uploads/2019/06/People-with-Disabilities-Brief.pdf or see the embedded PDF below.

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Join Advocates across the Country Tomorrow to #StopTheShock

Posted in Advocacy, and Public Awareness

From NCIL:

Tomorrow, April 24, marks five years since the FDA’s hearing on the graduated electronic decelerator (GED) shock devices used at the Judge Rotenberg Center (JRC). They found the device to cause serious harm and a ban was recommended. Since then, proposed regulations have been published and promises have been made, but the ban still hasn’t been finalized. Decades of advocacy have gotten us this far, and we need to keep the pressure on the FDA to release the ban and #StopTheShock! NCIL is proud to support the Autistic Self Advocacy Network’s #WeAreStillWaiting Campaign and tomorrow’s Day of Action to speak out against the torture and abuse inflicted on our disabled siblings at the JRC. We hope you will join advocates around the country by taking action and demanding the FDA #StopTheShock. Let them know that #WeAreStillWaiting by taking action in one of the following ways:

  • Go to your local wait-in. Advocates at ASAN’s 10 wait-ins will come together to engage their communities in the fight to #StopTheShock. Wait-ins can involve anything from handing out flyers to writing letters.
  • If you can’t make a wait-in in person, join the virtual wait-in! They’ll be making calls, sending emails, and more throughout the day, with scripts and tips available.
  • Call or email the FDA and tell them to release the ban on electric shock devices.
  • Call or email your elected officials and tell them to sign a letter asking the FDA to #StopTheShock.
  • Use social media to spread the word and get your friends involved, and make sure to use the hashtags #WeAreStillWaiting and #StopTheShock! Check out ASAN’s social media kit (PDF) for more ideas. One way to get involved on social media is to take a selfie showing where you are waiting for the FDA to release the rule, and encourage your friends to join you.
  • Write an op-ed or letter to the editor for your local newspapers, and let your neighbors know what they can do to #StopTheShock.