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Category: Advocacy

NWVCIL’s Youth Club!

Posted in Advocacy, Disability, Group, Outreach, and Public Awareness

Starting January 29, 2018 from 6 pm – 8 pm @ the CIL and will continue every fourth Friday of the month! This will serve youth with disabilities, ages 18-24 in the Morgantown and surrounding area. This club will offer: Peer Support Independent Living Skills Training Build Relationships And… The opportunity for ownership over the club…. which means, YOU plan activities on what YOU want to learn, see & do! For more information please contact Riley Freeland @ 304-296-6091 or rfreeland@nwvcil.org

NPR Series on Sexual Assault and Intellectual Disabilities

Posted in Advocacy, Disability, and Public Awareness

At a moment of reckoning in the United States about sexual harassment and sexual assault, a yearlong NPR investigation finds that there’s little recognition of a group of Americans that is one of the most at risk: adults with intellectual disabilities. The series starts on Monday, January 8 and runs through January 18th.

Jan 8: Morning Edition. Correspondent Joe Shapiro talks about the series with host Steve Inskeep

Jan 8: All Things Considered: The epidemic of sexual abuse of people with intellectual disabilities. Numbers obtained by NPR show they are sexually assaulted at rates more than 7 times those for all adults without disabilities.

Jan 9: Morning Edition: A visit to a Sex Ed class for people with intellectual disabilities. They talk about how they want relationships, but how the sexual violence of their past often gets in the way.

Jan 10: All Things Considered: On cases that go unnoticed when people have difficulty communicating.

Jan 16: All Things Considered: Police and prosecutors are often reluctant to take these cases. NPR goes back to Essex County, New Jersey, where the first case to get widespread attention–in Glen Ridge, New Jersey, 25 years ago–was prosecuted. And look at what prosecutors have learned since.

Jan 18: Morning Edition: Therapists Nora Baladerian and Karyn Harvey talk about the stunning violence in the lives of their clients.

Jan 18: All Things Considered: Self-advocates speak–thoughtfully–of the effects of sexual violence. This piece is entirely in the voices of people with intellectual disabilities (plus Joe Shapiro).

There will be print stories (with photos and art) on-line at www.npr.org.And the radio stories can be heard there.

World AIDS Day

Posted in Advocacy, Disability, and Public Awareness

“On this World AIDS Day we are here to remind you that ‘Everybody Counts’!

Everybody counts if we are to achieve universal health coverage and everybody must count if we are to eliminate AIDS and viral hepatitis as public health threats. Health services should be adapted to reach and meet the needs of those populations most at risk and affected, and this includes implementing a ‘zero tolerance’ policy to stigma and discrimination in all health services, and fully engaging communities as equal and essential partners in the response.”

See the full statement from Dr Tedros Adhanom Ghebreyesus here:  http://www.who.int/mediacentre/news/statements/2017/world-aids-day/en/

National Call-In Day on Wednesday, November 29

Posted in Advocacy, Disability, and Public Awareness

Stop the #TaxOnDisability

The individual mandate, tax credits, and medical deductions make the lives of disabled Americans easier.

The GOP wants to end them.

If the GOP Senate manages to eliminate the individual mandate provisions of the Affordable Care Act insurance premiums are projected to increase by 10% on average and an estimated 13 million people will lose health insurance. Worse yet, the tax bill raises the deficit by $1.5 trillion. Not only will this destabilize the marketplace, it will also throw people with disabilities and pre-existing conditions into the deep end of “high risk pools” which will, by all accounts, CHARGE CONSUMERS MORE FOR LESS COMPREHENSIVE COVERAGE.

When combined with the tax legislation proposed by the House of Representatives, the proposed bills also threaten to harm disabled Americans in other dangerous and sneaky ways.

For more information, please visit: http://mailchi.mp/dredf/national-call-in-day?e=857c8f2d3a

Graham-Cassidy Healthcare Bill Introduced

Posted in Advocacy, Disability, Outreach, and Public Awareness

Graham-Cassidy Healthcare Bill Introduced
From http://www.advocacymonitor.com/

This Wednesday, Senators Lindsay Graham (R-SC) and Bill Cassidy (R-LA) introduced the Graham-Cassidy-Heller-Johnson (GCHJ) proposal (PDF), the Republicans’ last-ditch effort to repeal and replace the Affordable Care Act (ACA) and make major cuts to Medicaid.

Like the previous bills we’ve seen, the GCHJ proposal would eliminate coverage and protections for millions while completely decimating Medicaid. The proposal would repeal the ACA individual and employer mandates, eliminate assistance that makes coverage affordable, revoke protections for people with pre-existing conditions, phase out Medicaid expansion, and dramatically cut Medicaid by imposing per capita caps. Just like the other bills, the GCHJ proposal will be devastating for people with disabilities.

NCIL is closely monitoring the progress of the GCHJ proposal, and we will be sending out a targeted action alert next week with more information for constituents of key Republican Senators. In the meantime, call your Republican Senators NOW and urge them to oppose the GCHJ proposal!

You can reach your Senators by calling the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). New tools are available at trumpcaretoolkit.org. You can also use Resistbot to have your texts turned into faxes, mail, or hand-delivered letters; use faxzero.com to fax your Senators for free; or contact them via social media. You can find social media contacts on Contacting Congress.

FEMA Meeting Announcement

Posted in Advocacy, Disability, Outreach, and Public Awareness

SEPTEMBER 19, 2017 PIERPONT COMMUNITY & TECHNICAL COLLEGE 1201 Locust Avenue Ruth Ann Musick Library,  RM# MMA 304-816-0658 Tuesday, September 19, 2017 5:00 PM – 7:00 PM Open to public, people with disabilities, and disaster survivors The meeting is open to all people with a disability, including staffers from CILs. FEMA will provide American Sign Language Specialists (ASLS), and a Communication Access Real-time Translation (CART). The purpose of this meeting is to provide information on disaster assistance and the registration process to increase knowledge for future disasters. In addition, learn how the disability community can play a role in Long Term Recovery Groups (LTRGs) by providing their expertise and community resources.
SEPTEMBER 19, 2017 PIERPONT COMMUNITY & TECHNICAL COLLEGE 1201 Locust Avenue Ruth Ann Musick Library, RM# MMA 304-816-0658 Tuesday, September 19, 2017 5:00 PM – 7:00 PM Open to public, people with disabilities, and disaster survivors The meeting is open to all people with a disability, including staffers from CILs. FEMA will provide American Sign Language Specialists (ASLS), and a Communication Access Real-time Translation (CART). The purpose of this meeting is to provide information on disaster assistance and the registration process to increase knowledge for future disasters. In addition, learn how the disability community can play a role in Long Term Recovery Groups (LTRGs) by providing their expertise and community resources.

House Judiciary Committee Approved H.R. 620

Posted in Advocacy, Disability, Outreach, and Public Awareness

On Thursday, September 7, 2017, the House Judiciary Committee held a markup of H.R. 620, the ADA Education and Reform Act of 2017. The bill was voted out of committee along party lines and will now go to the full House for a vote. All of the amendments proposed by democrats were voted down, also along party lines.

“…The bill would weaken the protections afforded us under the Americans with Disabilities Act and make it even harder to enforce our rights under the ADA. Twenty seven years after the passage of the ADA, the fact that Congress is working to make it easier to discriminate against people with disabilities is shameful.”

Read more: The Advocacy Monitor.

Introducing Our Lives: Safe and Strong Program

Posted in Advocacy, Disability, Outreach, and Public Awareness

Do you want to feel safer and more secure in your daily life?  Would you like to learn how to reduce your risk of being exposed to possible harm in various areas of your life?  If you answered, “Yes,” we are excited to tell you we are offering the Our Lives: Safe and Strong Program as part of our services here at Northern West Virginia Center for Independent Living. If you join us in the Our Lives Program, you will work in direct one-on-one partnership with a specially trained Our Lives NWVCIL advocate to identify areas of vulnerability you might have in your life now, and to develop safety plans and strategies to reduce your harm profile and increase your ability to live as Safe and Strong as you can.  The “Our Lives: Safe and Strong Program” is a collaborative project with Portland State University. For more information or to enroll with the Morgantown office, please contact Paulette or Dustin at 304-296-6091. To enroll with the Elkins office, please contact Brenda or Tiffany at 304-636-0143.
Do you want to feel safer and more secure in your daily life? Would you like to learn how to reduce your risk of being exposed to possible harm in various areas of your life? If you answered, “Yes,” we are excited to tell you we are offering the Our Lives: Safe and Strong Program as part of our services here at Northern West Virginia Center for Independent Living. If you join us in the Our Lives Program, you will work in direct one-on-one partnership with a specially trained Our Lives NWVCIL advocate to identify areas of vulnerability you might have in your life now, and to develop safety plans and strategies to reduce your harm profile and increase your ability to live as Safe and Strong as you can. The “Our Lives: Safe and Strong Program” is a collaborative project with Portland State University. For more information or to enroll with the Morgantown office, please contact Paulette or Dustin at 304-296-6091. To enroll with the Elkins office, please contact Brenda or Tiffany at 304-636-0143.

Healthcare Vote Expected Next Week

Posted in Advocacy, Disability, Outreach, and Public Awareness

Healthcare Vote Expected Next Week: The Fight Is Not Over!

From the National Council on Independent Living

  • The Senate released their updated version of the Better Care Reconciliation Act (PDF) yesterday, and all of our concerns remain the same. Read the Senate summary (PDF). The new version will still cut Medicaid by $772 billion, with an even more restrictive growth rate and deeper cuts starting in 2025. Fifteen million people will lose Medicaid. The bill also still eliminates the enhanced match for the Community First Choice Option, removes protections for people with pre-existing conditions, and allows waivers to eliminate essential health benefits, on top of adding a new provision to create separate insurance products for people with higher and lower health needs.
  • This new version of the bill has made NO improvements. Despite that, we’re hearing that Republicans who were undecided or even opposed to the previous version of the bill are now leaning toward voting YES. Republicans are reportedly becoming more unified around this new version, and we cannot let that happen!
  • The vote is expected to take place next week. That means that we have less than one week to fight this dangerous bill, and every single day counts. We need to make sure our Senators understand how dangerous this bill is for their constituents with disabilities. We need them to understand that we are literally fighting for our lives. And we have less than one week to make sure they hear us.

Take Action!

  • Call your Senators by dialing the Capitol Switchboard at (202) 224-3121.
  • Use Resistbot to have your texts turned into faxes, mail, or hand-delivered letters.
  • Use faxzero.com to fax your Senators for free.
  • Find your Senator’s email address, Twitter handle, and other information through Contacting Congress.
  • Please see our previous alert for additional ways to take action. Every single one of us needs to keep the pressure on our Senators! Call often, send emails, keep protesting, and Tweet at GOP Senators; take action in every way you can!
Priority Senators
We encourage everyone to reach out to their Republican Senators, but we have compiled a list of top priority Senators, including phone numbers for all of their offices, fax numbers, Twitter handles, and contact pages, as well as information for their healthcare staffers. Please utilize as many of these options as possible! If these are not your Senators, please make sure to reach out to everyone you know in their states!