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Northern West Virginia Center for Independent Living Posts

World Autism Awareness Day

Posted in Advocacy, Disability, and Public Awareness

From the UN:

“On World Autism Awareness Day, we speak out against discrimination, celebrate the diversity of our global community and strengthen our commitment to the full inclusion and participation of people with autism. Supporting them to achieve their full potential is a vital part of our efforts to uphold the core promise of the 2030 Agenda for Sustainable Development: to leave no one behind.”

Secretary-General António Guterres

2019 World Autism Awareness Day observance

“Assistive Technologies, Active Participation”

Tuesday, 2 April 2019, 10 a.m. – 1 p.m.
United Nations Headquarters, Conference Room 1

Autism awareness has grown worldwide in recent years. For the United Nations, the rights of persons with disabilities, including persons with autism, as enshrined in the Convention on the Rights of Persons with Disabilities (CRPD), are an integral part of its mandate.

When world leaders adopted the 2030 Agenda for Sustainable Development in 2015, the international community reaffirmed its strong commitment to inclusive, accessible and sustainable development, and pledged that no one would be left behind. In this context, the participation of persons with autism as both agents and beneficiaries is essential for the realization of the Sustainable Development Goals (SDGs).

For many people on the autism spectrum, access to affordable assistive technologies is a prerequisite to being able to exercise their basic human rights and participate fully in the life of their communities, and thereby contribute to the realization of the SDGs. Assistive technology can reduce or eliminate the barriers to their participation on an equal basis with others.

The Convention on the Rights of Persons with Disabilities acknowledges the instrumental role of assistive technologies in enabling persons with disabilities to exercise their rights and freedoms. It obliges States that are party to the Convention to promote availability and use of such technologies at an affordable cost, to facilitate access to them, and to undertake or promote research and development into new such technologies.

While technological advances are continuous, there are still major barriers to the use of assistive technologies, including high costs, lack of availability, lack of awareness of their potential, and a lack of training in their use. Available data indicates that, in several developing countries, more than 50% of the persons with disabilities who need assistive devices are not able to receive them.

In September 2018, the UN Secretary-General launched a new Strategy on New Technologies, which aims to define how the United Nations system will support the use of these technologies to accelerate the achievement of the 2030 Sustainable Development Agenda. The Strategy is also intended to facilitate the alignment of these technologies with the values enshrined in the UN Charter and the Universal Declaration of Human Rights, and the norms and standards of International Law, including the CRPD and other human rights conventions. These values include equality and equity, inclusion and transparency. Design and use of new technologies, according to the Strategy, should be guided by a rights-based and ethical perspective.

In the context of the Secretary-General’s Strategy, the 2019 World Autism Awareness Day observance at UN Headquarters in New York will focus on leveraging the use of assistive technologies for persons with autism as a tool in removing the barriers to their full social, economic and political participation in society, and in promoting equality, equity and inclusion. Topics to be addressed through discussions with self-advocates and experts include:

  • The Internet and digital communities: Leveling the playing field
  • Independent living: Smart home technology and more
  • Education and employment: Communication and executive functioning
  • Telemedicine: Opening the doors to healthcare
  • The right to be heard: Political participation and advocacy

In 2008, The United Nations General Assembly unanimously declared 2 April as World Autism Awareness Day.

Taken from the UN Website.

DIA Co-Sponsors Needed!

Posted in Advocacy, Disability, and Public Awareness

From NCIL and edited for WV voters:

We need to immediately secure members of the House Energy and Commerce Committee as co-sponsors on the Disability Integration Act – DIA (H.R. 555) in order to achieve movement on this bill in the 116th Congress.

Rep. McKinley sits on the House Energy and Commerce Committee, so please reach out to them right away. Tell them, “Please co-sponsor DIA (H.R. 555) today!” Then ask your family, friends, co-workers, and other community members to call and email as well.

This is the committee that will work the DIA in the House. They are in charge of the first part of the process of eventually bringing this bill to a full vote in the House of Representatives.

The House Energy and Commerce Committee has 55 members: 31 Democrats (we need 19 more) and 24 Republicans (we need 23 more).

Contacting Your Legislators
Call the U.S. Capitol Switchboard at (202) 224-3121 and ask for Representative McKinley’s office or contact your Representative’s office directly at (202) 225-4172.

Once connected, ask to speak with a staff member who handles civil rights. Make sure you give them your name and identify that you are a constituent. Tell the staff member, “Please tell Representative McKinley that I want them to co-sponsor the Disability Integration Act (H.R. 555) today!”

You can tell your story and use the talking points provided. Tell them to contact Amy Bos in Representative Jim Sensenbrenner’s office at 202-225-5101 or amy.bos@mail.house.gov to sign on as a co-sponsor today! This may take multiple calls and emails.

You can also call, email, and post to social media. Hashtags: #DIA#DIAToday #DisabilityFreedom.

Count me IN puppet show: M.T Pockets Theatre

Posted in Disability, Outreach, and Public Awareness

A wonderful event hosted by Marion County Public Library System!

At 10:30 AM they will be hosting the “Count Me IN” puppet program by the Puppeteers from M.T. Pockets Theatre in Morgantown. This presentation introduces children to the importance of disability awareness and inclusion. After all, everyone wants to play, learn, have friends and be included. We hope you will join us!

An introduction to disability awareness and inclusion:

Everyone wants to play, learn, have friends, and be included. The COUNT ME IN puppet program helps children understand that people with disabilities are much like they are. This age-appropriate introduction to disability awareness and inclusion is for grades 1 to 4 with a shorter preschool/kindergarten program. The cast includes Gina, who is blind and uses a cane; Jay, who is deaf or hard of hearing; Sally, who has a physical disability and uses a wheelchair; and their friends, Carmen and Mitch.

For more information, please visit the Marion County Public Library System.

NWVCIL at Disability Advocacy Day

Posted in Advocacy, Disability, Outreach, and Public Awareness

NWVCIL took Charleston by storm to advocate for inclusivity and barrier removal.

Posted by NWVCIL on Thursday, February 7, 2019

NWVCIL took Charleston by storm to advocate for inclusivity and barrier removal. Check out our Facebook page for pictures!